Michael Warechowski IV

Updates on our sweet Michael

on March 14, 2014

Many people have been asking us how Michael is doing since I haven’t posted anything in a while. He’s ok. Not good, not bad.

For the last month or so he has been struggling with allergies. At least, that’s what we think it is. He’s been sneezing (which I must admit, is really cute to watch) and has a lot of mucus. We’ve even noticed his eyes being a little red. Plus, I suffer from allergies so I thought, “like mother, like son,” right? Well now I think he has picked up a little virus or something because we can tell he just does not feel well. His poor little nose is all swollen and irritated on the inside from all the suctioning we’ve been doing. I think he throat hurts because he sometimes makes a face when he swallows. And then last night he threw up, which he hasn’t done in… I can’t remember when. So we’ve started him on antibiotics and hopefully in a few days he’ll be feeling all better.

As far as his seizures go, he is still having them despite starting a new anti-seizure med called Keppra. They are a little less often but no less intense. I’d say he has about 3 per week. They started him at a very small dose of Keppra so there is room to go up if we need to. The good thing is that we can sometimes tell when one is coming on and can calm him down before it starts.

So, my birthday is this month. You might remember that my birthday is also the anniversary of when we found out that Michael has MLD. Mike does a good job at making sure I stay busy all day. He has booked me a massage and I’m sure I’ll go out to lunch with family or friends, maybe play some tennis.

One last important update…A very dear friend of ours wrote a song about Michael and got some very talented (and somewhat famous) artists to record the song. It is a beautiful, touching and sad song so have some tissues ready when you listen to it. Please go to iTunes and search “Playgrounds in Heaven (Mikey’s song)” and download it for just $1. Or click this link: https://itun.es/us/ZNpfY All proceeds go to Mikey’s Mission. Please share the song with everyone you know.

Thanks for checking in! Mikey says, “It’s a beautiful day everybody!”

3 people this

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2 responses to “

  1. Shon says:

    Thank you for the update. Will definitely be downloading that song….

  2. Graham Cossick says:

    Our hearts and prayers are with you all.

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