FMLD

As if MLD wasn’t enough, my poor baby has to suffer through PAIDs episodes and bad vertigo spells. Today has been one of the roughest in awhile. Michael had a bad episode this morning – an hour and a half of his body completely dystonic (stiff), pupils dilated, sweating, constant whimpering and a sad look of discomfort and confusion. He took an ok nap this afternoon but woke up with bad vertigo – crying out loud, unable to open his eyes because the room won’t stop spinning.

This is so not fair. Why couldn’t it be me instead of him? I can’t even describe the heartache of seeing him go through this.

I called into work tonight because Michael needs me. As one of my very sweet clients said to me as I was rescheduling her appointment, “You are right where you need to be.”

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