Michael Warechowski IV

Updates on our sweet Michael

FMLD

on July 8, 2013

As if MLD wasn’t enough, my poor baby has to suffer through PAIDs episodes and bad vertigo spells. Today has been one of the roughest in awhile. Michael had a bad episode this morning – an hour and a half of his body completely dystonic (stiff), pupils dilated, sweating, constant whimpering and a sad look of discomfort and confusion. He took an ok nap this afternoon but woke up with bad vertigo – crying out loud, unable to open his eyes because the room won’t stop spinning.

This is so not fair. Why couldn’t it be me instead of him? I can’t even describe the heartache of seeing him go through this.

I called into work tonight because Michael needs me. As one of my very sweet clients said to me as I was rescheduling her appointment, “You are right where you need to be.”

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4 responses to “FMLD

  1. Shon Woods says:

    I’m so sorry that your sweet baby is going through this. I pray for his peace and comfort. I also pray for you and your husband. I know that God will guide you through this.

  2. K says:

    I am so sorry.- Kim Hatton

  3. debbie says:

    My heart just aches for you all when I hear about days like this for Michael (and for you and Mike)! I pray that Michael finds comfort and peace very soon! I’m so sorry:(

  4. Paul says:

    Poor buddy!

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