I apologize for not updating sooner! Many people have been asking about the results from Michael’s EEG. Well, the episodes that Michael has been having ARE seizures. They are partial seizures, mostly on the right side of his brain (where his shunt is) but there is a small amount of activity on the left side as well. Michael’s neurologist wants to go up on his Keppra again to see if it might help. Frustrated that his neurologist keeps wanting to increase his medication even though it doesn’t seem to be helping, I called his team in Pittsburgh to see if they felt that was a good plan. They do. They said that sometimes it just takes a higher dose or a combination of medications to get the seizures under control. So this past Saturday, we increased his Keppra from 350mg twice a day to 400 twice a day. Since then, he has still been having 3-5 seizures a day. He’s had 2 so far today…. Keep your fingers crossed that his increase helps!
Michael seems to be about the same otherwise. He’s still having bouts of nausea (or “pukies” as well call them) and discomfort but is pretty good for most of the day. He’s been waking up in the middle of the night pretty consistently – usually once or twice around 3 or 4am. We usually just have to suction him and re-position him and then he’s okay. We haven’t seen a big smile from Michael in awhile but he still gives us some sweet little smirks from time to time. I think all these seizures and the med-tweaking (yes, that is an official medical term) has him in a bit of a fog. Hopefully all of this will pass.
I can’t believe Thanksgiving is here! And soon Christmas will be here and then it’s 2015! Life needs to SLOW DOWN! We have a pretty laid back holiday planned. We are having Thanksgiving dinner with Mike’s family on Thursday and then with my family on Saturday. Michael does love to see the rest of his family – grandparents, aunts, uncles and cousins. When we get together, you can tell he is listening to everyone talk and laugh. It’s good to see him alert and interested. He’ll get lots of attention, snuggles and kisses for sure! Let’ just hope and pray that everyone stays healthy and feeling good so we can enjoy all of the festivities!
I hope everyone has a wonderful holiday. Cherish every moment you have with the one’s you love. I’ll try to update again soon!